A South Korean athletes association ATA Club Co. and health data company Longenesis signed an agreement to deploy a custom blockchain- based paperless consent management toolkit.
The consent management tool, built on Bitfury’s open-source Exonum blockchain framework, allows convenient and fast paperless consent retrieval, in accordance with all the data privacy regulations, including South Korean data privacy regulation PIPA.
The Longenesis toolkit consisting of the athlete oriented interface for direct and uninterrupted communication with data owners, the consent management tool for permission retrieval and access to the showcase and data querying web platform for anonymized metadata will enable ATA Club not only to communicate, survey and assemble profiles of the members, but also to be able to share these datasets for-profit with stakeholders for their R&D needs.
Garri Zmudze, CEO of Longenesis, notes “This partnership is among the first where a non-healthcare organization is to provide reach to individuals for on-demand data generation to R&D organizations”
The toolkit allows harvesting and streamlining real-world data coming directly from athletes and using this data in the research of sports nutrition and pharma companies. Additionally, the datasets will be supplemented by sequenced genomes, providing more in-depth analysis and data to the datasets. Negotiations with the South Korean genome sequencer to join the project are at the final stage. The solution will provide the R&D stakeholders with direct access to athletes for on-demand data generation and product validation.